Society Needs Regulations to Prevent Research Abuses

Society Needs Regulations to Prevent Research Abuses

A tension exists between scientists/doctors and government regulators.

(© wladimir1804/Fotolia)


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Robert Klitzman
Robert Klitzman, MD, is a professor of psychiatry at the Vagelos College of Physicians and Surgeons and the Joseph Mailman School of Public Health, and the director of the Masters in Bioethics program at Columbia University. He has published over 130 scientific journal articles and eight books, including When Doctors Become Patients; A Year-Long Night: Tales of a Medical Internship; In a House of Dreams and Glass: Becoming a Psychiatrist; Being Positive: The Lives of Men and Women With HIV; The Trembling Mountain: A Personal Account of Kuru, Cannibals and Mad Cow Disease; Mortal Secrets: Truth and Lies in the Age of AIDS (with Ronald Bayer); Am I My Genes? Confronting Fate and Other Genetic Journeys; and The Ethics Police?: The Struggle to Make Human Research Safe. He has received numerous awards for his work, is a Distinguished Fellow of the American Psychiatric Association, a member of the Council on Foreign Relations, and a regular contributor to the New York Times and CNN.
This man spent over 70 years in an iron lung. What he was able to accomplish is amazing.

Paul Alexander spent more than 70 years confined to an iron lung after a polio infection left him paralyzed at age 6. Here, Alexander uses a mirror attached to the top of his iron lung to view his surroundings.

Allison Smith / The Guardian

It’s a sight we don’t normally see these days: A man lying prone in a big, metal tube with his head sticking out of one end. But it wasn’t so long ago that this sight was unfortunately much more common.

In the first half of the 20th century, tens of thousands of people each year were infected by polio—a highly contagious virus that attacks nerves in the spinal cord and brainstem. Many people survived polio, but a small percentage of people who did were left permanently paralyzed from the virus, requiring support to help them breathe. This support, known as an “iron lung,” manually pulled oxygen in and out of a person’s lungs by changing the pressure inside the machine.

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Sarah Watts

Sarah Watts is a health and science writer based in Chicago.

When doctors couldn’t stop her daughter’s seizures, this mom earned a PhD and found a treatment herself.

Savannah Salazar (left) and her mother, Tracy Dixon-Salazaar, who earned a PhD in neurobiology in the quest for a treatment of her daughter's seizure disorder.

LGS Foundation

Twenty-eight years ago, Tracy Dixon-Salazaar woke to the sound of her daughter, two-year-old Savannah, in the midst of a medical emergency.

“I entered [Savannah’s room] to see her tiny little body jerking about violently in her bed,” Tracy said in an interview. “I thought she was choking.” When she and her husband frantically called 911, the paramedic told them it was likely that Savannah had had a seizure—a term neither Tracy nor her husband had ever heard before.

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Sarah Watts

Sarah Watts is a health and science writer based in Chicago.